Introduction

Our commitment to you is that we will respect any personal data you share with us, or that we get from other organisations, and keep it safe. We aim to be clear when we collect your data and not do anything that you would not reasonably expect. We only ask for information that will inform our engagement with you personally and provide vital statistical data to underpin research and campaigning for better support for those living gluten free. Your participation in research could be essential in understanding more about the disease, developing treatments and finding a cure.
Please read the following information to understand how we collect your data, the purpose of collecting it and how we process it. We will notify you of any changes to our privacy policy via our website and member communications.

The data we collect:

We collect some or all of the following information from you, or via third parties where you have consented to them sharing the data with us or from publicly available information.

From you:

Name, address, email, date of birth, health information, behavioural data from voluntary surveys and bank or card information where you buy our services and products. When on our website, we will use your IP address, cookies and services like Google Analytics and other statistical services to record your activity on our website to help improve the site and services to you.

From third parties:

Where you have given consent, third parties will share data with us, such as fundraising activities from Altruism Ireland, and similar sites or social media sites if you’ve consented to share data via your settings.

What we use it for:

By data protection law, we can only use your personal data if we have a lawful basis to do so, which will be one of the following depending on what we are using your data for:

• When it is in our legitimate interest, or
• When you consent to it, or
• To fulfil a contract we have with you.

A legitimate interest is when we have a valid reason to use your information as part of the maintenance of the Society as an on-going concern for all Members. But even then, it must not unfairly go against what is right and best for you. If we rely on our legitimate interest, we will tell you what that is based on the listing below.

Here is a list of all the ways that we may use your personal information.

• Provide you with the member services you have subscribed to, products you have purchased or information you have requested.
• Communicate with you regarding any opportunities to support Coeliac Society of Ireland including activities you have volunteered for or events you have signed up to.
• Administer your financial transactions with us including any fees, donations and processing any related gift aid / reclaim of tax on charitable donations.
• To keep a record of our relationship with you and to help us better inform our services to you in the future.
• Your communication preferences and where available, information on support that is local to you.
• To support the research community for coeliac disease by providing anonymised group data, or personal data only where we have your consent to do so should you wish to participate in any studies.
• To send you third party advertising where we believe the products will support living gluten free and / or related health conditions. We will not provide your personal data to third parties for them to market to you directly.
• If you engage with us via social media, we may in specific circumstances such as competition entry, pass your data to a third party but we will inform you of this before you submit your data so you can choose not to participate.
• In the event you enter your details on one of our online forms but don’t complete the submission, we may contact you to see if we can help with any problems you may be experiencing with our forms or website.
• Profiling our supporters by geographic, demographic and other information from the sources above (see The Data We Collect section) allows us to provide relevant and timely communications and a more tailored service to you. Profiling allows us to focus our resources, maximising the effectiveness of the financial support we receive and allowing us to make appropriate requests for additional support from those who may be able and willing to contribute more.
• If you join on behalf of a child under the age of 16, all our communications and services will be directed to you as the parent/carer to share with your child. We will never contact your child directly until they are over 16.

How we keep your data secure and who processes your data

The Coeliac Society of Ireland is the data controller and will perform the processes above with the support of trusted partners and suppliers, who will be held to the same standards of compliance as we are ourselves. We ensure they store the data securely and are contractually obliged to adhere to all the data regulations required by law.

We currently use third party suppliers to send emails, process payments, operate our website and apps. We only provide them with the data needed to deliver the specific service.

We continually monitor our trusted partners and suppliers to ensure they are adhering to the required standards.
We may need to disclose your data if required to the Gardaí, regulatory bodies or legal advisors. We will only ever share your personal data in other circumstances if we have your explicit and informed consent.

Where you use a third party to provide data to us, they will have their own data protection and privacy policies and we recommend you are aware of these before signing up.

Our communications with you

There are many ways for you to engage with us. The communications you receive from us will be tailored to the nature of that engagement(s).
By joining The Coeliac Society of Ireland as a member, depending on the option chosen, you will receive some or all of the following essential communications and services containing information on living gluten free and related health conditions and on the campaigning and fundraising activities of the charity should you wish to join in at any point. A full list of all member services is available here.

• Annual Food List with updates throughout the year
• A dedicated Helpline
• Access to local Support Groups
• Updates on the latest medical advancements on coeliac disease
• Invitations to Society Events
• Discounts and competitions for new coeliac products
• Monthly Ezine with food updates and coeliac community news
• New-look Coeliac Living magazine – sent four times a year
• Stronger Together – Together with the Society you can help influence government policy and the availability of affordable gluten-free products
• A dedicated members zone on www.staging8.coeliac.ie
• If you wish, you may opt out of any of these key services at any time by logging onto your account on our website or contacting our Helpline on 01-8721471.

We may also contact you by post, in addition to the above, with relevant and timely communications on the work the charity is doing, to give you the opportunity to help us campaign and fund raise for better support for those living gluten free or simply be kept informed of changes in policy and healthcare that may affect you. We believe that by engaging with the charity, you would reasonably expect to be kept informed when opportunities arise, but you may opt out if you don’t feel they are relevant for you at any time.

We will not send these communications by electronic means (including email, fax, telephone) unless you specifically give us consent to do so.

Retention

If you do not wish to continue to be a member of the Society, we will delete your personally identifiable information once four years has elapsed since your membership expired unless you update your communication preferences by going online or contacting the helpline.

We will retain your data to meet any legal and financial requirements. Retaining your data also allows us to support research into coeliac disease.

We are the only organisation in Ireland that has a register of people with coeliac disease, which can help researchers find better solutions to managing, and eventually, curing coeliac disease.

If you would like us to remove your data (except that which we must retain for legal and financial reasons), please let us know via the helpline or online and we will remove it.

Your data and your rights

You have a right to ask for a copy of the information we hold about you. To do so please send a description of what information you would like a copy of, along with proof of your identity to Membership, Coeliac Society of Ireland, Carmichael Centre. 4 North Brunswick Street, Dublin 7.

We will supply the information as requested without delay or advise you if we are unable to comply for any reason. If you find discrepancies in the information we provide, please advise us by calling the Helpline on 01-8721471 so we can correct them.

You have a right to ask us to restrict or stop processing your personal data, and if it’s not necessary for the purpose you provided it to us for (e.g. administering your membership or processing your donation) , we will do so. At your request, we will erase any data we hold unless it is required for legal or financial reasons if you no longer wish for us to hold or process your data.
If you have any questions please contact us on 01-8721471 for further information on data protection go to: www.dataprotection.ie

Charity No. 7484. Registered in Dublin, Company No. 367017. Company Limited by Guarantee and not having a share capital.

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