Reaction to being Glutened – How soon after?

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  • #101895
    Daryn Hughes
    Participant

    Hi everyone,

    On behalf of our son who is 16 and was diagnosed before Christmas – we have gone completely GF as a household, new toaster etc. Our son does occasionally eat from the school canteen – he always goes for the GF option but of course we can’t be certain that he’s not being contaminated there. Anyway he typically has pretty bad diarrhea every morning, usually after his breakfast but sometimes before. He generally eats GF cereal with full fat normal milk for breakfast or GF brown bread.

    So we know there may be an issue with lactose and we can obviously go lactose free for a while and see how he does. But here’s the question for you all – how soon after eating gluten do you generally react?

    Is he reacting to the breakfast or could it be hours after eating the ‘GF’ food in the school canteen?

    Easter holidays will help as he won’t be having the school food so we’ll have greater control over the diet but any advice would be welcome. He is still losing weight even since we’ve gone GF so we are concerned.

    #101955
    Geraldine Halpin
    Participant

    2hrs or longer I would know if I had gluten

    #106343
    Janet Leonard
    Participant

    Everyone is different, usually i find my joints ache and a fatigue then come the tummy upset can be anything from an hour to 3 hours. Try lactose free milk with cereal. All the best with finding right diet. Dietician visit might help too. Gluten is in lots things, toothpast etc.

    #108044
    foodie
    Participant

    Good Morning

    Just reading your post here, sorry to hear how your son suffers because I know from my sons experience(10) it is not pleasant, for my son it is always 24-48 hours after eating, I always have to go back that far, it starts with nausea dizziness weakness hands legs pain all over headaches brain fog ravenous for food blowing hot and cold fatigue constipation it really is very debilitating and we are very strict with his food. These symptoms can last up to a week.

    I do believe that coeliac is just not that straight forward even when you come off the gluten as there may also be other underlying or associated side effects but also accidental glutening despite doing your best…..

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